Sunday, August 20, 2006

Falling off the horse...

Not sure who else is out there. I am Jack. You may know me by a different name, but that is my name here on Utah CFers.
I wanted to talk about getting back on the horse. This week I am celebrating 9 years with my wife. Over the years I have had ups and downs with the CF. She too has had ups and downs dealing with CF and all the crap we have to do.
When I get frustrated about the stress of dealing with CF, I go to music, or movies. I take some time and watch a movie that I love, or just sit in the dark and listen to loud music in my headphones. This is a way for me to release the tension. Since I got married, this has happened less and less. Sometimes I still need to recoup, but more often it involves being with her. We just talk a lot of the time. About anything. Sometimes until the wee hours of the morning.
Because of her I have a bigger reason to fight the man (or disease if you prefer.) These things have helped me to be able to get back on the horse and continue to fight for time. And my wife has given me a reason to fight for time.
So there is no requirement for marriage here. That just happened to work for me. The sooner you find out what helps you, the better off you will be.
What do you do, when you have done all you can? How do you get back on the horse?

Saturday, August 05, 2006

Welcome

Hello to all you who visit. Whether you have stumbled across this by accident or on purpose we are glad you came. Please pardon while we get this up and running. We just got it going. If you would like to be added to the list of members for this you will be solicited by me personally (or another of the members), if you are not, or cannot wait, and you know me then you can contact me at your discretion.
As we get this going we hope that you will add insightful information. Anything you see fit relating to CF at all. If you have CF or know someone who has it, or would like to be involved for its cure be sure to keep in touch and come back often for updates and important information.
If you don't know what CF is or would like a refresher please visit the cff.org link to the right.